Warning; Very disturbing

[Darksword]

DONT CLICK LINK YET!

http://www.ispub.com/ostia/index.php?xmlFilePath=journals/ijpn/vol2n1/harlequin.xml

if your on the wankathron, avoid this, it will definatly make u give up.

Child with harlequin syndrome with a case of Psoriasis in his family.

If you are ok with the image below (spoilered for those who are squeemish/dont want to see this) then follow the link and read about it.

Spoiler

The child is dead now, and hopefully at rest, although apparantly he wasnt in any abnormal pain, although i've also heard hte opposite so.

 

[Jeriraa]

You might want to edit the spoiler. It begins with [/img] but should beging with

 

[Darksword]

You might want to edit the spoiler. It begins with [/img] but should beging with .[/QUOTE]


yep, checked after i posted and edited, thanks tho :)

 

[Phooka]

How the hell do you find shit like that that so sux...
Makes me think of how crap life can be and that on a sunny morning....
its just

Anyone who loves humanity don't look... rly

 

[Jeriraa]

yep, checked after i posted and edited, thanks tho

Yeah, noticed after I hit submit. You're welcome anyways.

On topic: I don't understand why they treat such sevre cases. This baby will never have a normal life.

Edit: Ok, just read he only lived for 28 days. 28 days of pain... fuckers.

 

[Eeben]

DONT CLICK LINK YET!

http://www.ispub.com/ostia/index.php?xmlFilePath=journals/ijpn/vol2n1/harlequin.xml

if your on the wankathron, avoid this, it will definatly make u give up.

Child with harlequin syndrome with a case of Psoriasis in his family.

If you are ok with the image below (spoilered for those who are squeemish/dont want to see this) then follow the link and read about it.

Spoiler

The child is dead now, and hopefully at rest, although apparantly he wasnt in any abnormal pain, although i've also heard hte opposite so.

Dude how do you find stuff like this? really dont wanna know what search word you used on google

 

[Darksword]

there are 3 sisters of adult age in the UK who live with harlequin syndrome, not sure on there quality of life, but i know that they need to "moisturise" there skin VERY regularly, many times a day.

this case is the only ever recorded case of Harlequin syndrome with Psoriasis.

Most harlequin babys die within days of birth, or weeks, iirc there is a case 1 in every 100,000. I believe the 3 sisters in the UK are the only ones to have lived any longer.

 

[Darksword]

Dude how do you find stuff like this? really dont wanna know what search word you used on google

wikipedia; harlequin syndrome

 

[Phooka]

wikipedia; harlequin syndrome

why on earth would you look that up?....

 

[Thorwyn]

If someone is interested in medicine.. why not?
from a scientific point of view, it´s on the same level as any other birth defect (the harlekin syndrome.. not looking it up on wikipedia ).
I`m not sure whether it´s such a good idea to post it here, but that´s another story.

 

[tris-]

how can you say "if someone is interested in medicine.. why not?"

and then say its not such a good idea to post it?

its interesting. there is nothing appauling about it apart from the physical appearance of the child (well some people would say appauling anyway)

 

[Biggilus]

and its illegal to 'put it down' so to speak
seriously, if it was your child? a few hours is a few hours too much
article reports some child lived for two and a half years on treatment, sounds like an unethical experiment to me, which parents condoned that?

 

[Biggilus]

and btw, i thoguth i was desensitized to EVERYTHING the internet had to offer, the goatse.cx man, any death photos, decpaitation movies (seen only one thta my mate sent me i dont go looking for this shit), i clena up all sorts of puke and crap on a day to day basis being a nurse, but this really made me churn.....

 

[Thorwyn]

how can you say "if someone is interested in medicine.. why not?"

and then say its not such a good idea to post it?

Because it´s a different perspective.

If someone is a student of medicine or a surgeon, he might have a scientific motivation to study diseases like this. He doesn´t look up sites like this to while away some time.
However, if someone is posting a link to a site like this on a public forum, the majority of people will just have a "OMG SCARY AND DISGUSTING" experience.

That´s the difference between visiting sites like rotten.com or watching "Faces of Death" and actually studying the topic.

 

[tris-]

then thats there problem for being an immature fuck face i suppose

i have no background in medicine but i sure am interested in reading about 'exotic' diseases.

 

[Amanita]

How many of you guys are parents? I'm not personally but because I'm seriously curious about lots of things I've asked both my mum and dad on a few occasions about this kind of stuff, and I think something my mum once said applies here, which was along the lines of:

"No matter how difficult your child is you somehow don't wish they were any different"

We were watching Donnie Darko at the time and it was the scene where Jake's character has just asked his mum what it was like to have a screw up as a kid.

I suspect if I ever found yourself in that position you'd want to do anything you can for your child to live and jump at even the slightest chance of them growing up and having a normal life.

imo, there's no black and white to this kind of stuff. Yes in the "wild" without the medical abilties we have today babies like this would die much earlier, but don't you think they deserve a chance? And even if the baby doesn't survive against all efforts maybe the things the doctors have learned can help some other person in the same situation. Now that'll sound like a dodgy piece of reasoning but where would medicine be if the doctors didn't learn from past case studies?

 

[Thorwyn]

i have no background in medicine but i sure am interested in reading about 'exotic' diseases.

Then you belong to the people who´re seriously interested, just as I am. However, I wouldn´t slap it all over a public forum, because chances are, that the majority of people would just be scared, not interested.

It´s the old Gunter von Hagens "Koerperwelten" dilemma I guess.

 

[Amanita]

Least he attatched appropriate warnings to it and allowed folks to decide if they were interested or not.

I bet Darksword posted this so he could have a discussion about it, sounds like he's researching into Harlequin syndrome for some reason, right?

 

[Phooka]

How many of you guys are parents? I'm not personally but because I'm seriously curious about lots of things I've asked both my mum and dad on a few occasions about this kind of stuff, and I think something my mum once said applies here, which was along the lines of:

"No matter how difficult your child is you somehow don't wish they were any different"

We were watching Donnie Darko at the time and it was the scene where Jake's character has just asked his mum what it was like to have a screw up as a kid.

I suspect if I ever found yourself in that position you'd want to do anything you can for your child to live and jump at even the slightest chance of them growing up and having a normal life.

imo, there's no black and white to this kind of stuff. Yes in the "wild" without the medical abilties we have today babies like this would die much earlier, but don't you think they deserve a chance? And even if the baby doesn't survive against all efforts maybe the things the doctors have learned can help some other person in the same situation. Now that'll sound like a dodgy piece of reasoning but where would medicine be if the doctors didn't learn from past case studies?

Thats great and i agree, but for one thing for sure we would have less problem with the overpopulating of the world

Where do we draw the line at one point... At the point we can cure cancer its only a very small step too immortality of the human body. All we have to do is be able too tell certain cells too stop multiplying or tell them too get too work.
I think chemotherapy just kills the gone mad cells too stop them from multiplying, but it is random and kills of lots more good cells. The way we can cure cancer is to give the certain cells a signal to stop being such random multiplying noobs. If you know how to do that you know how to activate certain cells, so you can tell a heart cell to go multiply and make yourself a fresher heart (cloning).

what is acceotable and what is not. Who are we to play god so to speak? And who are we to say that is not Evolution so why not clone etc

 

[tris-]

we never get immortality as we are now. oxygen keeps us alive, and in the end it kills us aswell

if we didnt get a build up of super oxygen in our body and it didnt oxidise our cells then wed be sorted.

 

[Thorwyn]

Least he attatched appropriate warnings to it and allowed folks to decide if they were interested or not.

I bet Darksword posted this so he could have a discussion about it, sounds like he's researching into Harlequin syndrome for some reason, right?

Yup... I didn´t mean to attack Darksword with my replies. I just wanted to point out the fine line between interest and voyeurism.

 

[Darksword]

Least he attatched appropriate warnings to it and allowed folks to decide if they were interested or not.

I bet Darksword posted this so he could have a discussion about it, sounds like he's researching into Harlequin syndrome for some reason, right?

just thought it was pretty interesting, i mean this child made me learn alot about how lucky i really am, im a perfectly healthy human being, as are many here, and theres nothing that some people wouldnt give to be in the same situation. It also got me thinking about how we should take care of our bodies, its a gift and should really be cherished.

I've seen this article floating around the internet a few times and thought some might be interested in it here. Which is also why i attached warnings and spoilers just incase; wasnt doing it for shock value.

What im interested in, is how come this diseases appear mainly in poorer countries, and in generally poverty stricken areas. Im guessing its to do with family diet, pollution, healthcare etc etc and it really sucks

 

[tris-]

i would say something like that is genetic. although i dont know enough about the disease its self to say for certain

 

[Jeriraa]

What im interested in, is how come this diseases appear mainly in poorer countries, and in generally poverty stricken areas. Im guessing its to do with family diet, pollution, healthcare etc etc and it really sucks

I dont think so. Its a genetic disfunction. When the genes are recombined during the fertilization of an egg there is always a chance for 'bad' combinations. It has nothing to do with healthcare or diet. There will always be a certain mathematical chance that your kid wont be born healthy.

However enviromental pollution can damage the DNA of the parents. Thou these kind of toxines are being produced most likely in industrialized countries.

 

[Ezteq]

good grief that poor baby.

made my chest hurt to look at him tbh, not disgusting or horiffic or anything like that he's a little baby fgs but the thought of the pain, being born and all you know for your whole life is pain, i imagine when someone touches the skin of someone with that condition its going to hurt so he never felt any tenderness.


thats just about one of the saddest things ever.