C
CptDoom
Guest
I wasnt going to do this, i really wasnt but here goes.
My niece has been in and out of hospital from her day of birth, 3hrs after she was born she had to have her spleen removed due to complications.
6 months later she was diagnosed as having Chronic Mylomonocytic Leukemia, a very rare strand of leukemia that affect less than 1% of all cancer sufferes worldwide and given 20% chance to survive it due to complications at birth.
The search for a donor (bone marrow) went into full effect, Anthony Nolans trust advertised on their websites, we arranged a fun day activity at a local park (Northampton Abington Park) where i and several others raised lots of money and spread te word. Ieven did a bungee jump, something i would have never ever done under any other normal circumstance. She was in all the local papers and was becoming quite the little celebrity but alas, no bone marrow match.
Eventually they had to settle on the bone marrow of her father (50% match) which reduced her chances of survival by a further 10%.
Operations go ahead, nerves get frayed and she stabilises after 2 years of Chaemo therapy and utterly amazingly manages to get her match (marrow) right up to 100%. A miracle beyond words.
Last september she is given the all clear, well as far as an all clear can be, she had regular checkups every 3 months just to make sure she was ok. 3 weeks ago she just celebrated her 4th birthday and just started nursery school. All is well.
This friday at 7.13 am she died of a heart attack, totally unrelated.
I dont want to depress anyone, and i dont even know if i feel better for posting this but im off for a while, here and irc.
My family is utterly devastated and me, i have never felt this way before in my life, my sister is catatonic and cant waste time here nor do i have the inclination. There are major things we have to do now, I feel like a prick saying all this, i am hoping its worth doing.
Bethany Coates.
My niece has been in and out of hospital from her day of birth, 3hrs after she was born she had to have her spleen removed due to complications.
6 months later she was diagnosed as having Chronic Mylomonocytic Leukemia, a very rare strand of leukemia that affect less than 1% of all cancer sufferes worldwide and given 20% chance to survive it due to complications at birth.
The search for a donor (bone marrow) went into full effect, Anthony Nolans trust advertised on their websites, we arranged a fun day activity at a local park (Northampton Abington Park) where i and several others raised lots of money and spread te word. Ieven did a bungee jump, something i would have never ever done under any other normal circumstance. She was in all the local papers and was becoming quite the little celebrity but alas, no bone marrow match.
Eventually they had to settle on the bone marrow of her father (50% match) which reduced her chances of survival by a further 10%.
Operations go ahead, nerves get frayed and she stabilises after 2 years of Chaemo therapy and utterly amazingly manages to get her match (marrow) right up to 100%. A miracle beyond words.
Last september she is given the all clear, well as far as an all clear can be, she had regular checkups every 3 months just to make sure she was ok. 3 weeks ago she just celebrated her 4th birthday and just started nursery school. All is well.
This friday at 7.13 am she died of a heart attack, totally unrelated.
I dont want to depress anyone, and i dont even know if i feel better for posting this but im off for a while, here and irc.
My family is utterly devastated and me, i have never felt this way before in my life, my sister is catatonic and cant waste time here nor do i have the inclination. There are major things we have to do now, I feel like a prick saying all this, i am hoping its worth doing.
Bethany Coates.